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Patient support Find a support group Setting up a support group Patient resources Parent & Caregiver Guide Mental health and wellbeing support Transition to independent living Financial assistance Advocating for yourself and others

About rare disorders What is a rare disorder? Facts and figures New Zealand's Rare Disorders Strategy Impact of Living with a Rare Disorder Rare disorders in New Zealand Stories project Clinical resources Rare Disease Day

About RDNZ What we do Rare disorder collective News Partners and Supporters Round Table of Companies Our People Submissions Newsletters Research Network Clinical Advisory Panel Events

Get involved For schools Donate Bequests Share your story Contact your MP

Contact us

Tarlov Cyst New Zealand

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Rare Disorders NZ
PO Box 7081
Newtown
Wellington 6242

Phone: 0800 RARENZ (0800 727369)
Office: 027-250-0619

Registered Charity CC22512

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